We Are RARE Inc 501c3

We Are RARE, INC. is a 501(c)(3)  (RARE, Awareness, Research, and Education) is comprised of board members including parents, medical and legal advisers who volunteer their time to reach out globally to advocate for rare brain disorders such as Schizencephaly, Plagiocephaly, Microcephaly /Hydrocephalus/macro-cephalic disorders, Lissencephaly and traumatic brain injury prior to birth, underlying conditions associated with rare cephalic disorders/cerebral palsy such as feeding dysfunction, seizure control, Alternative therapy, and vision impairment information.

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