schizencephaly awareness day

Schizencephaly Awareness Challenge 2021

By We are RAREJanuary 27, 2021Comments Disabled

Runner registration register on Athlinks Download the Sponsor packets here weareraresponsors Walk, push, jog, or skip, do it in one day or 50! We are RARE in collaboration with sponsors and support throughout the world are...

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Schizencephaly -neuronal migration disorder

By We are RAREJanuary 16, 2021Comments Disabled

Schizencephaly Poornachand Veerapaneni; Karthika Durga Veerapaneni; Sisira Yadala. Author Information Last Update: August 10, 2020. Go to: Introduction Schizencephaly is a rare congenital neuronal migration disorder characterized by the presence of...

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Disability in America January 2021

By We are RAREJanuary 16, 2021Comments Disabled

Northampton filmmaker probes environmental and public health factors … A little over 30 years ago, the Americans with Disabilities Act (ADA) was signed into law by President George H.W. Bush, marking the first major effort to protect people from...

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New Program To Train Doctors On Developmental Disabilities

By We are RAREDecember 17, 2020Comments Disabled

A new effort is underway to better prepare future doctors and other health care professionals to treat people with intellectual and developmental disabilities. The U.S. Department of Health and Human Services’ Administration for Community...

Growing Up Alongside a Sibling With a Disability

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Growing Up Alongside a Sibling With a Disability

By We are RARESeptember 06, 2020Comments Disabled

How does growing up with a special needs sibling change you? When children help with the education of a brother or sister with special needs, the outcomes are often good for both. According to Dr. Milevsky, siblings of children with special...

2014 Schizencephaly Awareness Events Blog Schizencephaly Awareness Day Schizencephaly Community Page

Happy Schizencephaly awareness day 2020

By We are RAREMay 19, 2020Comments Disabled

For eight years we have celebrated the lives of young adults, children and families across the globe. Today we thank all of you for your efforts in creating awareness and steps taken that have made tremendous strides in this disorder. Through...