rare brain

National rare disease day Ruben

National rare disease day. Feb 28th marks the 14th national rare disease day. Rubens Story. In 2019 we received a message from a lovely mum-to-be, Rachel, who reached out to us regarding her sons diagnosis of #Schizencephaly. At 34 weeks gestation during...
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Schizencephaly special books

Emmylou was born missing 40% of her brain and had an additional 10% removed to prevent severe seizures. Her family wants the world to know they love her just the way she is and are proud of Emmylou.     Emmylou’s Social Media: https://www.instagram.com/emmylou4you/
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