Rare days of awareness
We are rare is honored to have helped 4 disorders in creating the ribbons, days of awareness and legal proclamations.
It is an honor to assist families in raising awareness for rare conditions.
In addition to Schizencephaly, We Are R.A.R.E wants to expand our outreach to other rare brain disorders. Please contact us and let us know your child’s rare neurological disorder. We would like to add your information to our pages!