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January 2021
Schizencephaly Awareness Challenge 2021
Runner registration register on Athlinks Download the Sponsor packets here weareraresponsors Walk, push, jog, or skip, do it in one day or 50! We are RARE in collaboration with sponsors and support throughout the world are pleased to present the Virtual Schizencephaly Awareness Run 2021. Packages include custom 2021 Schizencephaly Awareness day shirts, Custom gorgeous medals, Bumper stickers, and more. Families can walk, jog, run or skip their way through our 5k levels or 10k levels…
Find out more »May 2021
2021 Schizencephaly Virtual Convention
Join families, Speaker, guests, and friends from across the globe for our celebration of Schizencephaly on May 19th This event is free to everyone with a limited capacity of 300 guests per panel. All sessions will begin at 9 am to 1 pm then commence again from 4 pm-8 pm. We welcome families to meet others and learn as much as possible with our speakers and specialists. Adult Schizencephaly Panel Teen Schizencephaly Panel Neurology Specialist Guardianship and protecting your family…
Find out more »June 2021
Dexter Owen Fundraiser and Celebration
In Loving Memory of Dexter Owen, born with a rare brain condition who passed at 9 months old. We are celebrating his birthday and all the joy he has brought to everyone he encountered. Signup: 10 am 1st bike out: 11 am Last bike out: 12 pm Return: 5 pm COST: $15 single rider $20 w/ passenger Route: Fillin Station Bern Station Hole in the Wall Max's Handle Bar Fillin Station
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