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Lissencephaly Awareness Day 2021

September 8

 

Our second Day of awareness for #lissencephaly is fast approaching. Please contact us for fundraising ideas, help and assistance with our legal forms created for you to gain awareness through your state.
Please download them here
http://wearerare.org/lissencephaly/
Families in Florida we are organizing a educational seminar involving round table discussion with our local hospitals about providing more information and support to families by directing them to RARE and our board of professional doctors familiar with Lissencephaly and underlying conditions. You are invited to join our team with 4 families we will choose for dinner.
Celebrate life with our colors and let us be #lissencephalyAware

Details

Date:
September 8
Event Category:
Website:
http://wearerare.org/lissencephaly/