There are families located daily throughout the world. We have parents all over willing to help new families by meeting and sending out literature.
If you are seeking support please join our research and educational support group on Facebook, or contact us here. We will find families close by to help you on your journey
We Are R.A.R.E. not only looks at providing help for the individuals with RARE disorders but their families who care for them too. We understand the stress and hardships involved to support our love ones. You are not alone! Please reach out to us at firstname.lastname@example.org if you need someone to talk to for emotional support.