This page is dedicated to the families that were told their loved ones would never do something due to Schizencephaly. Their abilities need to be recognized. The medical world must see this disorder for the achievements made by bilateral and unilateral patients that are defying their diagnosis.
“We were told that Trenton would be in vegetative state for the rest of his life, instead he put a new meaning to life because he overcame most of those odds and continues to strive to become the miracle he is” Kelly McCoy- mom to Trenton
“They said he would never talk, they didn’t realize he would invent a language of his own.” Tricia Dennis- mom to Noah
“Upon diagnosis of bilateral schizencephaly, we were told LeAnne would probably never walk…..They forgot to mention we would have one heck of a climber.” Nicole Hull-mom to LeAnne
“I was told Mila would never walk. Now she hears music in everything and dances everywhere.”
Jadine Benavidez Mom to Mila
“They told me everything would be up to Trent and they couldn’t tell me what he would be able to do.
What he was able to do was bring love I never knew existed.” Jaklyn Thomas mom to Trent