We Are RARE has a mission statement of finding ways to prevent, educate and raise awareness for Schizencephaly.
We are in meetings currently for research hospitals located in Orlando Florida who has shown great interest in this foundation.
As we move into 2017 RARE will be stopping some of our programs such as iPads and help for fundraising equipment. We want to slowly transition into remaining with the mission of this organization and we look forward to getting further medical research.

We are excited to see the progression of this disorder in the medical world globally.