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April 2015

Rocio’s Car Wash For Service dog

04.04.2015 @ 8:30 AM - 2:30 PM
Rocio’s car wash Sponsored by We Are RARE, 7440 W Peoria Ave
Peoria, AZ 85345 United States
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Donations accepted

  Rocio is a young adult living with Schizencephaly and especially the underlying disorder of Epilepsy. For those not familiar with the type of seizures she has you can find her videos on her Facebook page https://www.facebook.com/ProudEpilepticMother Due to the stroke she incurred before birth she has severe epilepsy and muscle weakness on one side of her body. Her husband is an military veteran and they have two beautiful children they are raising. Rocio never knows when a seizure may occur.…

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Orlando Magic Vs N.Y Knicks

04.11.2015 @ 7:00 PM - 9:00 PM

Join We Are RARE and be a part of Purple and Green night at the Orlando Amway arena April 11th Tickets are discounted through Our link and directly contacting Matan Cohen with the Orlando Magic. 100 tickets sold get our kids on the half court. For more information please contact Matan Cohen MCohen@orlandomagic.com ORLANDO MAGIC Ticket Sales Representative (407) 916-2835 Direct (407) 916-2909 Fax

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May 2015

Schizencephaly Awareness day 2015!

05.19.2015
Schizencephaly Awareness day 2015,

We are hearing the buzz from the internet about some awesome 2015 awareness day events happening. This makes year 4 for us all with even more petitions and Governors celebrating alongside. Wear you purple and green and show support for our warrior friends please. We cannot wait to see the pictures.

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Run For Bryan Sponsored by We Are RARE

05.23.2015 @ 7:30 AM
Schizencephaly Awareness 5K for Bryan, 1406 w northwest blvd
Winston Salem, NC 27102 United States
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$1 - $25.00

Run for Bryan race is on! The event time is from 7 to 9 a.m. at 801 East Salem Avenue to 5k will start at 7:30 a.m. and the one mile race shortly after. Bryan was born with Schizencephaly as well as underlying diagnosis's from the disorder. He is always smiling and eager to tackle the world, all while looking like his handsome self. He is need of some equipment that will further his abilities as he continues to grow…

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August 2015

Star Wars Themed Colorado Rockies game N.Y Mets Schizencpehaly

08.22.2015 @ 6:10 PM - 9:00 PM
Star Wars Colorado/Mets Game, 2001 Blake St
Denver, CO 80205 United States
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$15.00 - $30.00

 Code for this event is RARE2015 Our Schizencephaly Colors are Purple (for  Epilepsy /Pediatric stroke and  Green for Cerebral Palsy.) Colorado Rockies Verses the New York Mets. Our founders son is a big fan of the Mets because that is his team here in Orlando but also a huge fan of Colorado for their support. He is also known to kick it with some Star Wars Legion members too. We want all Legions, fans and best costumes at this game you…

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October 2015

Lukas and Jayson”s RARE fundraiser

10.07.2015
Lukas, Mya, and Jayson We Are RARE fundraiser, The Shops at Fox River 3343 Shoppers Drive
Mchenry, IL 60051 United States
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  All proceeds from this event will got to the families of these three beautiful children. Lukas is a special little boy he was born with a rare condition called Lissencephaly, which literally means smooth brain, is a rare brain formation disorder caused  during the 12th to 24th weeks of gestation resulting in a lack of development of brain folds and grooves. Terms such as 'agyria'  or 'pachygyria' are used to describe the appearance of the surface of the brain. Children with…

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November 2015

NY Jets Vs Bills RARE Fundraiser

11.12.2015 @ 11:00 AM - 9:00 PM
NY Jets-Bills fundraiser, 7004 International Dr
orlando, 32819 United States
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$10

Join us Thursday November 12th 11 A.M to 9:00 P.M all day and present this coupon. 10% of all sales that day go to We Are RARE and Noah's Tomato chair fundraiser. Present this ticket to your server and 10% of funds go to our fundraiser. We want to thank all the contributors to this fundraiser. Thank you to The NY Jets fanpage and the NY Jets themselves for their donations. The only thing left to cover now is the…

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Toledo Buffalo wild wings

11.16.2015 @ 5:00 PM - 9:00 PM
Ada-Lily’s fundraiser, 6710 west central ave
Toledo, OH 43617 United States
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Please come out and support if you are local to this event. Come out and meet Ada-lily!! Contact Stephanie Ziemann for information about this fundraiser Ada-Lily  

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June 2016

RARE casino day King’s head British Pub Queens birthday bash

06.11.2016
RARE casino and queens Birthday bash, 6460 US Highway 1 N
st augustinne, 32095 United States
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Please come and support us and celebrate the Queens birthday We have tons of exciting stuff going on. Watch this space for more details. We have PIRATES We have REDCOATS We have a CANNON!!!!!!!!!!!! We have CAKE. We have PRIZES Grand Prize $500 cruise

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September 2016

Schizencephaly/RARE 2016 Convention

09.23.2016 @ 9:00 AM - 09.25.2016 @ 9:00 AM
Schizencephaly Orlando convention, orlando, FL United States + Google Map

You Must go to the event page and register so we can document the number of people attending. Click here to Register As a Surprise for our families attending this sold out convention....We are taking you all to Disney!! 2016 First Schizencephaly Convention Orlando Florida hosted by we are RARE and the Avanti resort. Speakers and guest line up is complete. See our video Join us for our first ever Schizencephaly family convention in Orlando Florida Sept 23 through the…

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