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October 2014

A.J.’s Birthday


AJ was diagnosed with closed lip schizencephaly at ten months old. He has received physical, occupational and speech therapy ever since. AJ likes to run and play outside, go swimming in the summer, play in the leaves in fall and making snow angels in winter. He loves ninja turtles and superhero movies. He is a very happy young boy who makes friends everywhere he goes.

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Lily’s Birthday


Lily is a very happy girl dispite the problems she has had. She was my healthiest baby at birth and the only one that spent her time in the hospital in the room with me. I first noticed something wasn't right when she was just over a year old and wasn't walking or climbing. Our search for a neurologist began. In the months that followed it became more apparent that there was something just not right. Just after she turned…

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Aaron’s Birthday


Aaron was diagnosed with Schizencephaly in January 2013, He was born with a unilateral closed lip on the right side of his brain so it affects his life side. It was a long tough journey at first but today he has shown us how strong he is and he can conquer anything that comes his way. We love him no different from when he was born it just shows us how life is really precious and valuable.

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November 2014

Scout’s Birthday


Scout was born at 37w4d with Schizencephaly and as a result, microcephaly as well. We were able to bring him home with us after a brief stay in the NICU and his seizures are well-controlled by his medication. He is seven months old and cannot yet sit up by himself but is an absolute joy and he loves to smile and laugh. We have high hopes for our little boy.

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Aiden’s Birthday


Aiden is the sweetest little boy ever! He will be 5 november 19th, 2014. He will be starting his 3rd (and last year) of preschool in august 2014. Aiden has a little sister that he loves dearly. Aiden has taught me to look at life a whole new way and I would not be the person I am today if it wasn't for aiden. He is very smart and pleasent! He loves to help his daddy work on cars! Aiden…

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Tryston’s Birthday


Tryston is adopted. He is 2. I am a single mother starting over so that this special angel can be in a loving home and not foster care. He has Septo Optic Dysplasia/ONH, cerebral palsy, schizencephaly. open lipped. He does not walk or talk, but is the love of my life. I adopted his brother as well 4 years ago when he was an infant too. Tryston loves to play with dogs and trucks. He likes to scream a lot…

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December 2014

Ansley’s Birthday


Ansley is about to be 7 years old. She has a unilateral opening that affects motor skills. She cannot walk and is also not very verbal. One year a ago, Ansley underwent surgery on her hips and also had tendon length king. This surgery has not helped and has actually made things worse. She gets Botox injections every 3 months. Ansley uses nova chat to communicate. We also have speech, occupational and physical therapy twice a week, along with the…

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Skye’s Birthday


Skye is my third child, she has schizencephaly and microcephaly and very spastic.She is a happy 9 1/2 yr old with a remarkable health..she is on no medication so far. She has sleeping issues but nothing more..Skye loves getting attention and enjoy being surrounded by family, friends. Skye loves to go to school...the summer holiday is way to long for her..she rather be at school with friends. Skye is very aware of her surroundings and don't miss nothing...she is very…

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Madelyn’s Birthday


Madelyn is a beautiful little 8 year old girl who suffered a stroke in utero. She was diagnosed with schizencephaly, epilepsy, septo optic dysplasia, CP, global development delay, she is non verbal. She is a very animated little girl. She loves to laugh ..her laugh is contagious. She loves to listen to music and also enjoys dancing with her mom. She loves going on the swings at the park and going for walks outside in her new wheelchair. Her favorite…

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Leanne’s Birthday


LeAnne was just recently diagnosed with bilateral schizencephaly. We suspected something was wrong by age 12mos because she couldn't sit up. Drs put it off as just a small delay and insisted it was nothing. It took numerous seizures for us to be referred to a bigger hospital. She is currently 19mos old and was diagnosed on July 1st 2014. She is a very special gift from up above and lights up everybody's world.

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