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Schizencephaly/RARE 2016 Convention
09.23.2016 @ 9:00 AM - 09.25.2016 @ 9:00 AM
You Must go to the event page and register so we can document the number of people attending.
As a Surprise for our families attending this sold out convention….We are taking you all to Disney!!
2016 First Schizencephaly Convention Orlando Florida hosted by we are RARE and the Avanti resort.
Speakers and guest line up is complete.
See our video
Join us for our first ever Schizencephaly family convention in Orlando Florida Sept 23 through the 25. 2016 for our first convention including guest speakers, medical professionals, therapists and vendors.
I’m Aware We Are RARE
Friday Sept 23
8 a.m. Family meet and greet in the commons
Pool area and cabana
Friday Sept 23 9 A.M breakfast
Not provided by RARE Across the street at Dennys
Presentations for Friday
10 a.m. Special needs Trust and wills
11:00 a.m. Dr. Lauren Nickens
Celebration Family Chiropractic
Will be joining our line of vendors and speakers on ways to control scoliosis. Screenings and evaluations will be on site for Friday and Saturday
11:45 a.m Florida medicalmarijuana.net
Editor in Chief at Florida’s largest online cannabis culture website.
1:30 p.m. Regina Nelson CEO at The ECS Therapy Center PhD
In depth look at Schizencephaly seizures Author, Student, CEO, Medical Consultant
3:00 p.m. Dr. Jose Herrera-Soto
Dr. Herrera-Soto is an Orthopedic surgeon in Orlando, Florida and is affiliated with Orlando Regional Medical Center. Dr. Herrera-Soto trained in Puerto Rico and Cincinnati. Then he was on the faculty at Penn State University prior to joining Orlando health. Dr. Herrera-Soto is an accomplished spine surgeon He also recently completed a special fellowship in Switzerland where he studied new methods for complex hip surgery and in children and young adults with early onset arthritis. He has published several scientific papers in peer-reviewed journals and has been a speaker at national and international meetings. American Academy of Orthopaedic Surgeons Pediatric Orthopedic Society of North America
European Pediatric Orthopaedic Society Scoliosis Research Society Specific training in hip dysplasia.
5:00 p.m. vision discussion Lighthouse for the blind
Vision therapy information. Early intervention and child development for vision impairment.
10:00 a.m. Whole food Blends presentation with Vitamix
Three meals prepared for blending alongside Vitamix. You must be at the entire presentation and education portion to be placed in the raffle for the Vitamix Blender whole food industrial Blender giveaway (provided by RARE and donated by Vitamix) those that have been provided a blender from RARE in the past are not eligible for this.
Whole hospital room bio decontamination company
12:00 p.m. Island dolphin care presentation
Stephanie Bishop, Tricia Dennis
located in Key Largo Florida IDC integrates dolphin therapy and SP, OT
1:30 p.m. DoTerra essential oils
3:30 p.m. Unilateral Adult Panel * Must see*
Our adult panel will discuss their experiences with Schizencephaly and how to assist your child through life. (explanations on what seizures feel like) Auras, behaviors and discussions on those that went through surgery to eliminate seizures
Speakers: Paul Fincher, Heather Leigh, Amanda Kirspel
7:00 p.m. Italian Dinner Provided by We Are RARE
Drawings and winners announced.
*Presentations begin at 10 a.m. Friday Morning. Vendors will be there 9: a.m.-9 p.m. Friday & 9a.m.- 6 p.m. Saturday
There will be arts and crafts available for smaller children as we ask during our presentations to limit traffic and noise.
Sunday Sept 25
Meetup at Denny’s not provided by RARE
(across the street from Avanti resort)
Sunday we go to DISNEY!!
We will have 20+ vendors happening all day Friday and Saturday. They will give presentations and helpful info.
Some in attendance confirmed, Water filter system, wheelchair
Accessible vans, air purifiers, Vitamins, many more!
Event will be filmed by local media for future documentary.
Thank you to the support of our sponsors that are making this event a family success.
I’m AWARE We are RARE!!!