Donate to We ARE R.A.R.E.
We Are R.A.R.E provides the support to families faced with this rare neurological disease and to help raise more awareness for this condition and other traumatic brain injuries. Since We Are R.A.R.E. is a not for profit organization all funds needed to operate on a yearly basis is through donations. This convention is a place where families can come to be with others and get the information they need to make decisions and life choices for the future.