Denver Nuggets and We Are R.A.R.E.

The Denver Nuggets have partnered with We Are R.A.R.E. for a fundraiser. Start spreading the word and join us at the Pepsi Center. The Denver Nuggets will be battling the Houston Rockets. This is NOT a game to MISS! Tickets are on sale through the Denver Nuggets sponsored fundraising website http://www.nuggetstix.com/wearerare. Any tickets purchased at the box office or through any other means does not count towards our fundraising efforts. Help us reach our goal to sell as many tickets as possible before March 7th.

Share with your friends, family and co-workers! Click here to download a flyer to pass around Continue reading

October’s RARE Super Hero Notification

Every month we will have a drawing to select one person to be our RARE Super Hero. The winner of the drawing will get a special mask made for them from Crystal’s Creations.

Go to our RARE Super Hero’s page to submit your entry!

A Preview of Faith Anne’s Story

We go through so many difficult times as a special needs parent, especially with a disorder no one understands. There is nothing more amazing than knowing a child with special needs, they teach you how to appreciate the things we all stop paying attention to s a child; like the shape of a cloud, or the sound of the birds. We should all be as lucky as Faith to see the world the way is meant to be seen; with love and an open heart.

— Faith Anne

Excerpt from the Book: Schizencephaly – Angels with Broken Wings (Authors: Tricia Dennis and Stephanie Zeimann)

A Preview of Noah Dennis’ Story

The door swung open, and the words I will never forget came spewing from his mouth like he was so detached from me that my feelings did not matter. ” your child has a rare disorder called Schizencephaly. He is missing part of his brain, and we are sending you to counseling now.” The door shut and I watched my husband drop his head. That was the first time I ever saw him cry.

— Noah

Excerpt from the Book: Schizencephaly – Angels with Broken Wings (Authors: Tricia Dennis and Stephanie Zeimann)

A Preview of Carroll Sequin’s Story

The doctor told me I had Schizencephaly. He explained the gist of the disorder to me and said I needed to see a neurologist to get further details. I left there in tears and feeling very alone. I was unsure what to think, but at least I finally had some answers to my 20 year long journey.

— Carroll Sequin

Excerpt from the Book: Schizencephaly – Angels with Broken Wings (Authors: Tricia Dennis and Stephanie Zeimann)

Alabama Professionals

John T. KillianName: Dr. John T. Killian, M.D.

Specialty: Orthopedic Surgery

Affiliated Hospitals: University of Alabama Medical Center

Websitehttp://www.orthopedicsforkids.com/

Recommended By: Katie Ellis

 

 

Charles R. LawName: Dr. Charles R. Law, M.D.

Specialty: Pediatric Rehabilitation

Affiliated Hospitals: United Cerebral Palsy of Greater Birmingham Inc

Websitehttp://www.ucpbham.com/

Recommended By: Katie Ellis

 

 

Joseph M SherrillName: Dr. Joseph M Sherrill, M.D.

Specialty: Orthopaedic Surgeon

Affiliated Hospitals: Orthopaedic Sports Medicine Clinic of Alabama, PC

Websitehttp://www.osmcoa.com/

Recommended By: Katie Ellis

 

 

A Preview of Yanni’s Story

I remember the first day I received Yanni’s diagnosis, And I am so glad the doctor was wrong and that I heard those words about resilience from our neurologist. The brain is resilient. And our lives are definitely resilient if we remember to take it the only way we really can; one day at a time.

— Yanni

Excerpt from the Book: Schizencephaly – Angels with Broken Wings (Authors: Tricia Dennis and Stephanie Zeimann)
 

A Preview of Ada-Lily’s Story

Ada and I tend to be in our little world most of the time. In this world of ours, Ada-Lily is a typical child. I do not pretend that she isn’t disabled, the way she is has become my normal. It isn’t until we are around other people that I am brought back to reality.

— Ada-Lily

Excerpt from the Book: Schizencephaly – Angels with Broken Wings (Authors: Tricia Dennis and Stephanie Zeimann)
 

Florida Professionals

december surgery with dr birnbaumName: Dr. Mark Birnbaum, MD

Specialty: Pediatric Orthopedics and Surgery

Affiliate hospitals: Center for Orthopedics at Arnold Palmer Hospital

Website: http://www.orlandohealthdocs.com/

Recommended By: Tricia Dennis

 

 

Prashant M. DesaiName: Dr. Prashant M. Desai, MD

Specialty: Pediatric Neurology, Pediatrics

Affiliated Hospitals: Florida Hospital

Website: https://www.floridahospital.com/

Recommended By: Tricia Dennis

 

 

avatar-profile-pictureName: Dr. Yolanta Sadlowski, MD

Specialty: Neurology

Affiliate hospitals: All Childrens Hospitals

Website: NA

Recommended By: Kathryn Baatz

 

 

Colorado Professionals


Kevin E ChapmanName
: Dr. Kevin E. Chapman, M.D.

Specialty: Pediatric Neurology

Affiliated Hospitals: Children’s Hospital Colorado

Websitehttp://www.childrenscolorado.org/

Recommended By: Lisa Lee

 

 

avatar-profile-picture

Name: TD Schenck, ATP,CRTS

Company: NuMotion

Specialty: Seating and Mobility Specialist

Affiliated Hospitals: Denver and Rocky Mountain Area

Websitehttp://www.numotion.com/

Recommended By: Lisa Lee

 

 

Pamela E Wilson

Name: Dr. Pamela E. Wilson, M.D.

Specialty: Rehabilitation & Therapy, Concussion

Affiliated Hospitals: Children’s Hospital Colorado

Websitehttp://www.childrenscolorado.org/

Recommended By: Lisa Lee

 

 

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