On May 19th 2015 Senator Hoeven from North Dakota introduced a resolution to senate making May 19th Schizencephaly Awareness day. Along with the Wolff family we would like to thank you all for your efforts and for pushing this through. What an amazing day to celebrate life and our children and families. Please click Senator Hoeven’s picture to the official press release.
Since 2011, families have taken part in Schizencephaly Awareness day celebrated on May 19th. We are excited to say we now have it documented with over 30 states and 79 cities! The celebration of this day brings necessary awareness and hope to many families that have been flooded with local and statewide support. We now have several websites and official awareness ribbons recognizing our efforts for MAY 19th, our official Schizencephaly Awareness day!
Our colors are Purple for Epilepsy and Green for cerebral Palsy.
These colors embrace the embodiment of everyday living for the thousands of families facing this rare disorder. We are very proud of your continued efforts and through the determination and support of so many we can now call this our recognized day of awareness.