Schizencephaly Awareness Day

 

 

 

Join our 2017 Schizencephaly Awareness event

https://www.facebook.com/events/283317968770730/

11139440_1110273645665410_6087175570227608769_n

 

 

Senator John Hoeven

Senator John Hoeven

On May 19th 2015 Senator Hoeven from North Dakota introduced a resolution to senate making May 19th Schizencephaly Awareness day. Along with the Wolff family we would like to thank you all for your efforts and for pushing this through. What an amazing day to celebrate life and our children and families. Please click Senator Hoeven’s picture to the official press release.

 

 


Since 2011, families have taken part in Schizencephaly Awareness day celebrated on May 19th. We are excited to say we now have it documented with over 30 states and 79 cities! The celebration of this day brings necessary awareness and hope to many families that have been flooded with local and statewide support. We now have several websites and official awareness ribbons recognizing our efforts for MAY 19th, our official Schizencephaly Awareness day!
Our colors are Purple for Epilepsy and Green for cerebral Palsy.

These colors embrace the embodiment of everyday living for the thousands of families facing this rare disorder. We are very proud of your continued efforts and through the determination and support of so many we can now call this our recognized day of awareness.

 

 

 

22395_1109915379019181_8833414939116863646_n

11011207_10152556021094159_9036564612151327188_n

10922810_10153336731549913_1062483056540223581_n

11214300_10205786764461171_5948239349909347360_n

11329777_10205551007429061_2858508481886082830_n

10905983_10153316157918910_6472221919711373749_n

11222641_988048704539093_8989639004379231384_n

 

 

 

 

 

 

 

 


          2016

10995655_10206843994246496_4077257294056129724_n

11169947_888938487821211_1564173057271288847_n

 

13346859_10206338153161758_8371252896726082097_n

13346751_10206531545390643_4791828118906204810_n

Connor

13346660_10209641592858640_8757611138306229608_n

13344608_10209641585338452_1685939695282068244_n

13344498_10209641586818489_6233032410345596658_n

13343013_10206338154241785_5596055579263668839_n

13339596_618290801654353_5271021134326614198_n

13339533_1214618188548385_5711817528826417613_n

13335915_10201951986958420_6854136983705561295_n

13335873_10206412767497779_117017960120175238_n

13335670_10209641587418504_8846709012781438548_n

13331143_10209641588338527_5882059707810261662_n

13331009_10206338151201709_6103477213256290346_n

 

 

 

13322109_135378186866389_4337940570773886100_n

 

13321905_10209641588018519_1315898348631588227_n

 

13319970_10209641583618409_1436672438903672465_n

13315399_1140185282668563_6971239647578397558_n

13315289_10209641586178473_7119218814667094015_n (1)

13312810_10209641584098421_6403524301986112195_n

13312747_10209641582458380_6197248200840868474_n

13310618_10209641582978393_1795660833355674542_n

13310322_1159279494094152_7022567393836515647_n

13307400_10154163805565775_4144961206013317716_n

We Are RARE

13315370_10208170026621627_7819943421245933438_n

13254579_10208170026381621_5556377981217688117_n

 

13325622_1203569659656233_5014224298296367869_n (1)

13321986_1203570149656184_2356892225124003901_n

13346490_1203569939656205_2232734377451010191_n

13310374_10157196459750727_2405583739975692603_n

13312834_10157196455220727_3892378268685573285_n

13322138_10156923589090366_5911028606078627526_n

13339483_10157196456745727_758024852250974425_n

10291847_761659290534921_5885431302594744648_n

10314515_761659267201590_1390798518111278865_n

10527549_10152719832357133_2784923354568844045_n

11063938_10153336653284776_5274310886176300584_n

11102697_10155686719620294_3923866889400910245_n

11143728_10206009330539850_1779036225423577866_n

11226195_10206666929091619_7025858839785319891_n

13118888_1769938723239316_1573476929974910741_n

13221085_10153786109391731_4245424168267199205_n

13230140_10153663550011395_6384642440152237750_n

13254205_271626499851055_3960260278634630901_n

13256193_1722347881373213_3165119199101460963_n

b240e8cc-b425-4c3f-abed-28acaafe9943

1 Comment

  1. […] shopping for a great cause and tell your girlfriends! You can also read more about his condition here and in our about us section on the website. I do post a lot of pictures of him on my Instagram so […]