We Are RARE ” My Beautiful Brain 2017 convention will be focusing on Neurology, Cannabis case studies and education for traumatic brain injury and treatment for underlying conditions associated with Schizencephaly and other rare brain malformations
This event is open to the public but you absolutely must register!
YOU MUST REGISTER FOR THIS EVENT
We Are RARE invites you to “My Beautiful Brain 2017 Schizencephaly convention ” At least one family member must purchase a bundle.
A weekend full of keynote speakers with the emphasis on neurology,
When Booking Online please follow the directions below:
• STEP 1 Login to our website: www.hiuniversal.com
• STEP 2 Put in the Group Dates: 10/19-22/2017
• STEP 3 Click on the: Group Code Blue Link
• STEP 4 Enter Group Code: WAR
• For Calling in Reservations 24/7 days a week: 1-800-216-0635 – same dates and same group code.
Meet and greet all day. swimming if weather is nice or cocktail area/coffee
Friday Oct 20, 2017
Regina Nelson PhD keynote speaker
8:00 a.m – 9:30 a.m
cannabis education and case study Schizencephaly 8:00 am-9:30 am
*We expect this to be one of the most filled room speakers
Pruvit keytone supplement 10:00 am-11:00 am
Three moms will be speaking about being refugees, treating with cannabis and the results they have shown. Press is welcome for this panel.
Dr. Eric Thompson is a very successful chiropractor, 2007 Palmer Florida grad, in the Jacksonville, Florida area. He has 3 practices, 2 human practices and 1 equine practice, that he runs with his wife, Natalie Thompson. They also have 3 very busy children, ages 13 and two 10 year olds. Vasayo was brought to Dr. Eric in early December 2016 and he was immediately intrigued by the business opportunity and the outstanding quality products. As soon as he learned exactly what he had gotten into Dr. Eric was off to share the same amazing opportunity and products with his closest friends and relatives. He wanted to be sure he brought as many people as he could with him on his Vasayo journey. Having spent the past several years growing distant from many of these same people because he was so busy living the family, business life to provide a good life for himself and his wife and children. Becoming the first Diamond in the company, never having done network marketing before, Dr. Eric has been able to rekindle many friendships and has built SO MANY more through Vasayo! As one of the top leaders in Vasayo he spends much of his time helping other business builders learn and share the very same opportunities with their own family and friends. These organic relationships that are being made daily will last a lifetime. Dr. Eric wants nothing more than to live up to every one of Vasayo’s visions and principles, One Life Touching Another, transforming lives Physically, Financially, Spiritually, and Socially, and of course the ultimate goal of touching a million lives!
Dr. Green graduated from Florida State University with a Bachelor’s degree in Nutrition, and then furthered his experience by graduating from the prestigious CORE Institute of Massage Therapy in Tallahassee, FL. He spent several years in the fitness industry as a highly regarded personal trainer in the Tampa Bay and Central Florida area before attending Palmer College of Chiropractic Florida. He graduated with his doctorate degree in chiropractic medicine in 2007. Dr. Green has been trained in several chiropractic, physical therapy, and nutritional medicine techniques including Applied Kinesiology, Graston Technique, Pettibon Postural Correction Technique, Chiropractic Extremity Techniques, Neuromuscular Therapy, Corrective Exercise, Nutrition Response Testing, and Biosignature Modulation. Dr. Green has held certifications from the International College of Applied Kinesiology, National Academy of Sports Medicine, the American College of Sports Medicine, and the American Council on Exercise.
Dr. Green utilizes Microlife nutritional products in his office successfully. His patients favorite product is the Renew for inflammation
Robert Scott Bell 1 pm-2:00pm
You will be amazed by the amount of information about healing that is kept secret from you and what you can do to learn more about it! Robert Scott Bell is a homeopathic practitioner with a passion for health and healing unmatched by anybody on radio. Robert has personally overcome numerous chronic diseases using natural healing principles and has dedicated his life to revealing the healing power within all of us, and as a well-known and respected member of the health community, has access to fantastic guests from every specialty and practice to better equip our listeners to heal themselves from the inside out! He will be available at his booth for further speaking
Scheril Murray Powell, Esq. Counsel at Michael Minardi, P.A. Cannabis and Civil Law. 2:00 p.m- 3:00 p.m
Attorney. She is also General Counsel for Minorities for Medical Marijuana and General Counsel for Patience
with Patients. She is a graduate of Florida International University College of Law. She is a member of the
Florida Bar, Dade County Bar Association, Broward County Bar Association, Palm Beach County Bar
Association, and National Bar Association, and was selected by her peers to speak at the FIU Law
She has been selected to present at a number of Cannabis Conferences including the Canna-Ed Conference,
Cannaday, and Cannabiz Conferences hosted by the Florida Cannabis Coalition. Scheril is the regular
Cannabis Law expert on Cannabis Life Radio every Sunday morning on 850 The Talk Radio in Florida, and
Vice President of HIGHLIFE Media. She is the Vice-President of the Broward- Palm Beach Cannabis Lab.
She presented at the National Association of Black Journalists and National Association of Hispanic
Journalists Joint Conference in August 2016 on the topic of: “Exposing the Truth: Getting Access to Audio
and Video Evidence in Police Involved Shootings”. Scheril is the Secretary of the FIU College of Law Alumni
Board. While at FIU Law, she was the Charter President of the Palm Beach ABA Student Organization and a
member and coach of the Board of Advocates Negotiation Team. In 2013, Scheril won the FIU Law
Intramurals Negotiation Competition, also she and her partner won the ABA Southern Region Negotiation
Competition. In 2014, she and her partner came in 2nd place in the Nelson Mandela International Negotiation
Competition and she was awarded the distinction of Best Overall Negotiator for her efforts.
Scheril served on the Black Law Student Association’s National Board for two years and is passionate about
eradicating sex trafficking and other social justice issues such as police brutality. She has interned at the State
Attorney’s office in the 15th Judicial Circuit of Palm Beach County and for two judges of the 17th Judicial
Circuit of Broward County. In the summer of 2014, she was served as an Anti-Defamation League Summer associate.
She believes that practicing the law and advocacy for the disadvantaged go hand in hand. She is an activist and
has dedicated her time and resources to promoting awareness, access to educational resources, and support for
survivors of domestic violence and trafficking. She has a Facebook page called “Police Chronicles” which
documents national police interactions with the community.
She mentors Pre-Law and Law School students of diverse backgrounds and has been a speaker at the Black
and Hispanic Prelaw Conference, the Diversity Prelaw Conference, and the HBCU Prelaw Summit and Expo.
Law is a second career for Scheril. She spent over a decade in the wireless industry working for T-Mobile,
USA; T-Mobile, UK; RIM BlackBerry; and MetroPCS as a Customer Retention Strategist and Marketing
Interface Manager rolling out training, technical change, cultural change, and process improvement projects
Scheril received her undergraduate Business Management degree from Florida Atlantic University with a
minor in Marketing where she pledged Delta Sigma Theta Sorority, Inc. and served as the Student Government
Senate Speaker for seven campuses.
Scheril credits her hard working and strict Jamaican parents James and Judith Hall for her work ethic, tenacity,
persistence, and commitment to excellence. She was taught at a young age that we all have a responsibility to
each other and must be the example that tears down stereotypes while opening the door for others to follow in
your footsteps. She stays motivated by remembering that her son Judah is watching how she lives her values
and “walks the talk” in her daily activities. Scheril believes that every test is for a testimony that will glorify
God. If He can do all that he has done for me…imagine his plans for you.
She will be joined by
Green Roads World CBD Cannabis Life Radio
Introducing Representative Carlos Guillermo is Shawn Hermanson
Chief Marketing Officer and Director of sports division for Boulder Botanicals in Denver, Colorado. In charge of all marketing efforts of the company, plus educating and bridging the gap between professional athletes and the CBD industry. Shawn has been CEO of four different companies since college and has successfully sold each business throughout the years.
Shawn is also working on getting CBD products into professional sports leagues, such as the NFL, NHL, and MLB.
Representative Carlos Guillermo Smith 3:00 p.m- 3:30p.m
Representative Carlos Guillermo Smith is a proven fighter for Florida’s working families and students. An alumnus of the University of Central Florida, Rep. Smith proudly identifies as a LGBT, Latino and forward thinking millennial feminist who reflects the values and diversity of Florida.
In November 2016 Rep. Smith made history as Florida’s first openly-LGBT Latino lawmaker, representing House District 49 in East Orlando. Since then, he co-founded and was elected Chairman of the Legislative Progressive Caucus. As a lawmaker, Rep. Smith been a champion for civil rights, cannabis reform, affordable higher education, gun safety, mental health, and animal rights. Out Magazine has recognized Carlos as one of the “survivors and heroes of Pulse” in their annual OUT 100 edition for his outspokenness in support of those impacted by the Orlando tragedy.
Florida Politics and SaintPeteBlog recently named Rep. Smith a “Winner of 2017 Session” and he has received numerous awards from the League of Women Voters of FL, the Florida Education Association, and the Hispanic Federation for his leadership.
Daniel Cabello MD neurology 3:30 pm-4:30 pm
*Dr. Cabello joined Clinical Neurosciences of Tampa Bay in 2007. He is a Harvard trained epileptologist with vast experience in the latest epilepsy treatments such as epilepsy surgery, Vagal Nerve Stimulation (VNS) therapy, responsive neurostimulation (RNS) or also called neuropace, use of medical marijuana (low THC cannabis, also known as charlotte’s web), ketogenic diet, laser oblation surgery and the use of new antiepileptic drugs. During his two-year Epilepsy fellowship at Massachusetts General Hospital, Dr. Cabello gained expertise in the management of complicated epilepsy patients, interpretation of EEG, Polysomnography and evoked potentials, and participated in clinical and basic research involving antiepileptic drugs and advanced imaging techniques. During his fellowship, he also trained and is board certified in Sleep Medicine. He has medical privileges at Morton Plant Hospital, Tampa General Hospital, Mease Countryside Hospital and actively participates in the weekly epilepsy conference at Tampa General Hospital to discuss epilepsy surgery cases with other regional epileptologists.
(We expect a larger turnout for this speaker)
Schizencephaly swim night! 7:00 pm
Everyone get down to the pool. Parents grab a soda or a nice cocktail and let’s have a Schizencephaly swim night with our heated pool. A great opportunity to get to meet other families
Breakfast 7am at hotel
Janel Ralph Palmetto Harmony 8:am-9:am
Janel Ralph is the President and CEO of Palmetto Synergistic Research LLC. Her company produces a line of hemp products known as Palmetto Harmony.
Janel entered into the hemp industry as a parent advocate after her research led her to the discovery that CBD sourced from the bloom of the Cannabis Sativa L plant would potentially be of benefit to her child, Harmony, who suffers from a rare genetic condition called, Lissencephaly. After several failed attempts to obtain safe, tested, CBD-rich hemp oil for her child, she decided she would need to source her own material and create her own product line if she was to be able to get her daughter a safe, tested, consistent product. From this birthed an international corporation which aids to many who are in need of the healing properties of whole plant oils produced from the Cannabis Sativa L hemp plant
DoTerra essential oil 9:00am -10:00
DR Barry Gordon MD 10 a.m-10:30 a.m
Dr. Carlos Colon-Bengoa was born in Puerto Rico and ventured to Orlando to attend college at the University of Central Florida, where he received his undergraduate’s degree. He went on to complete Dental school at the University of Iowa, where he proudly became a Hawkeye. He continued his education by completing his residency with the University of Florida.
Dr Carlos Colon has since served the Central Florida community for 14 years. A huge Orlando City fan, Dr Colon has worked hard to help build community and political support for the soccer club. His children, Sofia (16) and Alejandro (13) play in the Orlando City youth teams, with Alejandro playing in the US Soccer Development Academy team.
DR Joseph Rosado 11:00 – 12:00 P.M
Originally from the Bronx, NY. After spending several years in central Florida working as an orderly and then an EMT/Paramedic, Dr. Rosado realized his passion for the medical profession. He started chiropractic school at Life College in Marietta, GA where he graduated cum laude with a BS degree in Clinical Nutrition and a doctor of chiropractic degree. After practicing for several years, he went on to Universidad Central del Este, in San Pedro de Macoris where in 2001 he graduated suma cum laude with his medical degree. After working as physician and clinic Director in Salt Lake City, UT, team physician for the Costa Rican Institute of Recreation and Sports, and staff physician at Hospital Mtropolitano in San Juan, PR, Dr. Rosado relocated back to Florida. In 2005 Dr. Rosado completed his MBA in Health Care Management from University of Phoenix, magna cum laude. Once back in Florida, he worked as the Director of the Communicable Disease Division/Epidemiology and immunization departments as well as the Sr. Lead Physician at St. Johns County Health Department.
Dr. Rosado then moved on to Tricounty Hospital in Williston, FL to be the medical director, and also worked in a private practice with the Institute of Medical and Cardiovascular Excellence (IME/ICE) in Williston and The Villages providing primary and functional/regenerative care. Upon resigning from both Tricounty Hospital and ICE, he worked as a temporary (Locum Tenens) physician at the North FL Evaluation and Treatment Center in Gainesville, FL, Pinellas County Jail in Clearwater, FL, Escambia County Jail in Pensacola, FL, Florida Health Source in Pierson/Deltona, FL and Genesis Family Practice in Orange City, FL.
He was on the bureau of speakers for the United For Care (Amendment 2) campaign in 2014 and 2016 and in 2015 Dr. Rosado took both the Florida Physicians Cannabis Course and the Florida Cannabis Medical Directors Course. In the Summer of 2016, he was the first to recommend high CBD:low THC in the greater Central Florida region to an adult patient with Stage 3 brain cancer and in the fall of 2016, he was the first to recommend medical cannabis (THC:CBD 1:1), in the state of FL, to a pediatric patient, who was terminally ill.
Presently, Dr. Rosado is providing primary care services, together with Immigration Physicals, Suboxone Therapy and Therapeutic Cannabis (Medical Marijuana) recommendations at Comprehensive Health Center in Orlando, FL; and volunteers once a month at Shepherd’s Hope Community Clinics.
Adult Panel 12:00 pm-2:00 pm
Heather Leigh, Paul, Justin, Sarah will be answering questions and explaining what they know about Schizencephaly based off their life with it.
*We expect a large turnout for this event*
What is it like to live with this disorder? How does medication make our adult speakers feel. Get your questions ready for these amazingly brave adults that live with unilateral and bilateral Schizencephaly
Moderator Randy Ross
Randy Ross is the Florida Chairman of America First Federation, President of the “Trump 2020” Club, Contributing Writer to Florida National News, Ongoing radio guest for the “Florida Adversaries” Conservative Radio Show, Former Orange County Chairman of the 2016 Donald J. Trump Campaign, graduate of Ball State University and Certified in Government Contract Pricing and Administration for the General Services Administration from George Washington University. Ross is originally from Indianapolis, IN, and has lived in Orlando, Florida, for 24 years.
Alternative therapy Alison Morel
Constraint therapy, E-STIM therapy
Stephanie Bishop 2:30 pm-3:30 p.m
Intensive therapy, horse therapy, and sports/community therapy
this session is about special therapy, programs, sports and things you can do locally to keep your child active and engaged as well as living out their greatest potential by creating life environments.
Family Mic 3:30-4:30
ask your questions. talk about your concerns and lets get the lines of communication open for one another. Speakers are there for answers as well as other families and professionals. this is your time to be heard. What does life touched by Schizencephaly mean to you. THIS IS YOUR TIME TO BE HEARD.
Banquet dinner provided by RARE 7 p.m
salad and sides
*foods can be blended for whole food tubie children
All theme park passes will be distributed at this banquet
Schizencephaly swim 9:00 pm
Breakfast at hotel
Schizencephaly awareness at Orlando theme parks.
$1000 for 1 hour speaking and booth
$500.00 for booth and advertising
$250.00 for pick table/literature
$125.00 for table sponsor
*This event will be filmed and used for distribution nationally and internationally for medical facilities and research*
All vendors must be paid in full no later than August 20, 2017
Or when all vendor space has been paid
Send check to:
We are RARE Inc.
4208 Chateau Rd
Orlando, Florida 32808
(In notes 2017 Convention)
by your company
Space is limited to 35 Vendors
Please contact us at wearerare.org
We Are RARE is dedicated to making sure these conventions give families the opportunity to attend and gain as much information on treatments and therapy as possible. We have families coming from other countries and states, for that reason we are keeping cost to a minimum for families with medically complex seizure disorders so they can get as much information as possible and still be able to attend.
Your Sponsorship helps cover banquet dinner, transportation to and from theme parks as RARE has teamed up with Give kids the world, Banners and literature for events and programs as well as overall event costs.
1 year advertising on We Are RARE website
1 child sponsorship of and iPad
Medium Logo on banner
small logo shirt
1 Year advertising on We Are RARE website
2 iPads for children
Medium logo on banner
Medium logo on shirts
Sides of photo banner
2 year advertising We Are RARE website
Sponsorship of 2 children with Schizencephaly
2 iPads sent to children from your company
Large logo on shirt
Sponsorship for 6 months of advertising on Billboard rewards
2-year advertising We Are RARE website
on banners, shirt sleeve and literature
Event host logo on all banners
Title Logo on main banner
3 iPads for children sent from your company
We Are RARE Inc. 4208 Chateau Rd Orlando, FL 32808
Please contact us at Tricia@wearerare.org Ph (407)617-4111
Robert Roundtree Robertroundtree@gmail.com Ph (407)-274-1779
We are rare is teamed up with Give Kids the World compassion care program to allow all families to select a theme park. Disney, Universal or Sea World
This year we’ve put much consideration into location and particular information that will allow us to understand this rare neurological disorder called Schizencephaly and allow our Schizability to shine
*There are no events planned for Thursday except meet and greets by the pool and commons
*There will be a special booth for special consideration for genetic forms of Schizencephaly and gene mutations.
*RARE pamphlets and print outs
*Professionally Filmed. Waivers on site for video release
Many of us will be arriving Thursday to welcome our families discount price for hotel is from Oct 19-Oct 22
Island dolphin Care
Magic butter machine